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ACRIA Update
Winter 2008 - Vol. 17 No. 1
Personal Perspective: My Babies
and Me
by Delia G
I
found out I was positive in 1994 when I tried to sell my blood. I
thought this was an easy way to get extra cash and help others at the
same time. I never would have guessed what I was about to learn.
A grave-looking doctor gave me the news. A million thoughts
rushed through my head. I couldn’t breathe, or even think.
Before that second, I had believed that all people with HIV should go
to an island somewhere to prevent others from getting it. Now I
had it. The doctor encouraged me to get a second opinion, then
gave me a pamphlet of referrals. I went home, closed myself in my
room, and cried for hours. How could I tell my family? My
boyfriend? My child?
I called one of the health clinics from the referral sheet to schedule
an appointment. It was torture waiting for the test
results. I kept telling myself it was some sort of horrible
mistake. When the news was delivered, it was too much for me and
I broke down.
I was consoled with a strong hug and given a flyer with some numbers
for support groups. There wasn’t anything specially geared for
someone hearing the news for the first time, and there was only one
support group specifically for women. I had so many
questions. How long was I going to live? When would I get
all skinny and skeletal? When would I get AIDS? How
contagious is it? Do I need a will? Who will take care of
my son? Does he have it? What about my boyfriend? I
felt my needs and questions could best be answered by the women’s
support group.
When I went to my first support meeting I had a notepad with questions,
and the women were very kind and patient and answered every one of
them. There was a library of materials, including videos and
books explaining the disease to children. I grabbed all I could
carry and spent three days going over the information. I looked
for other support groups and services, but they were all geared toward
gay white men and people in recovery. There was barely anything
written about or for straight women, and nothing at all for black
women.
When I met my doctor to go over my treatment and schedule an
appointment to test my son, I got another shock: I was
pregnant! The doctor asked when I wanted to schedule the
pregnancy termination – just like that! When I hesitated, he
said, “You aren’t planning on having the baby!? It will
die!” I scheduled the appointment in tears, got the prescription
for my medicines, and left. I went to a support group meeting to see
how the others dealt with this issue.
When I shared what the doctor had said, the room went berserk! The
women told me that there was a good chance that I could deliver a
healthy baby if I started my medicines right away. I was ecstatic
and furious at the same time! What if I hadn’t gone to the
support group and went to the appointment?! I was relieved and
worried to know that I didn’t have to abort my baby and that I could
know the joys of pregnancy again. I was only 22 years old –
pretty young to learn you will never have another baby.
The women were very warm and offered all the peer support I could dream
of. We discussed how to deal with the side effects of the
medicines I was going to be taking. We talked about dealing with
the psychological and emotional issues around the disease from a female
perspective, and disclosure. I was still coming to grips myself
and needed time to decide how and when I told my family. But I
had to tell my partner I was positive and pregnant.
That was so hard to do. I really felt like my boyfriend and I had
a magical connection and that he would be the man I would grow old
with. I would have loved to share the joy of raising a child with
him instead of telling him there is a good chance I will be dead in
five years. I was already a widow. My husband had died a
few years earlier after complications from a motorcycle accident and a
flu-like cold.
I met my boyfriend after work and told him that we needed to go our
separate ways. I told him I was positive and had just found out I
was pregnant, but there wasn’t anyone else. I told him he needed
to get tested for the virus. We went over how the virus is
spread, and about having a healthy baby even if the mother is
infected. He said he loved me and wasn’t going anywhere. I
was dazed. It never dawned on me that he would even consider it.
I helped him find an anonymous testing center and tried to help prepare
him for testing positive.
We went to the same clinic where I had my terrible news and prepared
for the worst. He came out with a frown and told me he tested
negative. I was very surprised, and a little resentful. I
felt horrible that I really was alone in this battle, but relieved that
he didn’t pass it to me.
When the baby came, the first test was positive like we expected, but
the next tests came back negative. The pregnancy was a little
much on my body and immune system, so we postponed the planned surgery
to get my reproductive organs severed. I was given a bag of
condoms and shots to prevent pregnancy and left the program after six
months.
So here I was, 23 years old, with a steady boyfriend, a four-year-old,
and a newborn, and I was the only one with the virus. I didn’t
get to breastfeed, but it was a small sacrifice to have a healthy
baby. I became active in the HIV community, going to schools to
discuss HIV prevention, and I started a support group for HIV-positive
women of color. I got a job at the mall.
Then one day I was unable to button my pants. A coworker joked
that perhaps I was pregnant. I laughed and said, “That’s
impossible. I always use a condom, and besides I’m . . .” and I
caught myself. I stammered that I am on the shots which prevent
pregnancy.
Nevertheless I went to get a pregnancy test on my lunch break and was
told I was indeed pregnant. I had cheated the odds last time and
I didn’t want to press my luck. I prayed that if this baby was
healthy, I’d get the surgery whatever the costs.
Now my boys are 16, 12, and 9. All are healthy and HIV negative
and my boyfriend is now my husband of eight years. He is negative
as well. I got my tubes tied as I promised and have no regrets.
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